Monday, June 18, 2012

Thank you, thank you Jill!

I have been so very blessed to have my cousin Jill here for my recovery. So far it's going well. Tim has had the past 2 weeks off work too so I have had so much wonderful care!

We have been able to visit with many people, go for short and long walks, and do a little sight seeing. We went to the Temple Square, and to the Farmers Market downtown. How wonderful it has been to have my dear cousin to laugh with, to cry with, and to recuperate with. Thank you Jill for the sacrifice you made to come to Utah and care for me. Your time is a gift worth more to me than I can express. I love you dearly and thank you greatly:-)

It turned out that my incision was not 5-6" but rather the length of my entire abdomen. The surgeon gave me a hysterectomy, removed my spleen, my omentum and 11 lymph nodes. 

Tim had a hospital bed waiting for me at home which has been very helpful. Jill and Tim have alternated sleeping on the couch to help me through the night. I am now able to get up and out of bed myself. I am taking less pain medicine and able to move around. I still receive a shot each day to keep my blood from clotting; but that will end Saturday. I need to remember to rest each day. I am expecting a text from Jill each day to remind me, to rest and remind myself,  "I'm recovering."

My mom and niece Holly arrive tomorrow. We are so excited!!

Visit to the surgeon to have drainage tube removed.

Beautiful flowers, sorry I don't know how to turn
these pictures right side up
 


Jill prepping me for a shot. 
Jill teasing me that she was trying
 to carve her initials in my belly with each shot!!
Almost Jill:-)

Sorry I don't know how to turn this picture right side up.
Grateful we had a hospital bed at home!!


Jilly and me! Doin" the tourist thing!

My favorite guy in the world. Maaawaaaa! I love you Tim!

Getting ready to see the surgeon. One week after surgery.

Grueling work taking care of Deb!


God bless you Jolene! (one of the night shift nurses)

Homecoming!! 4 days after surgery.

Getting ready to leave the hospital

We miss you!
Thank you for coming Jill!! You are awesome!! 

Surgery and hospital experience


So I am finally at a point where I could only fantasize about being – past the surgery, past the initial surgery pain and into recovery at home. Just 2 weeks ago I wondered what it would be like to be at this stage…what would the surgery be like? The incision? The hospital? The nursing care? Will I need familiar faces at the hospital to support the professional help I will receive? How many days would it take me to get through any unbearable pain? Would there be unbearable pain? What would THAT feel like? What will the surgeon find, what will she remove and leave behind? How will David respond to me being gone? Will he miss me? Will he visit me in the hospital? Would the prognosis for a long life be different once they looked inside? 

Tim has been wonderful about keeping family and friends updated daily through text messaging. If you want to be added to that phone texting list, please let me know. I should have asked earlier…sorryL  E-mail me (daboggess@comcast.net) your phone number, call or text me. I want to make sure and stay in touch with people who are interested in staying in touch – whether by phone calls, texting, blog, e-mail or Facebook (which I am not a regular communicator).

Tim and I arrived at the hospital Tuesday morning at 6 a.m. – thankful that we had the first surgery appointment of the day. (Thank you Alyssa for coming at 5:20 a.m. to care for David all day!!) We prayed that the surgical team had had a good night's sleep and were fresh and ready for what was to come. Pastor Jim was already at the hospital waiting to send us off to surgery full of prayers and encouragement. I changed into hospital garb and Pastor John arrived. We had a few moments of God's Word and prayer before the nurses came into prep me. It really was all a blur. I remember talking to the anesthesiologist and surgeon about getting an epidural. As I now try to recall the epidural installation, I can't. I know I was awake for it but I cannot recall it. Thank God! Interesting how that remembering thing works.  The epidural was to be my source of pain relief/control until the catheter came out. Unfortunately it didn't turn out that way :-(

The surgery ended about 1:30 pm. The first thing I remember after surgery was P-A-I-N. I was in and out. Tim said "pain" was all I kept saying. Unfortunately I was alone in my room for about 1.5 hours after the recovery room because Tim was not informed that I had been moved to a roomL. How sad is that!? Where were the nurses? Why wasn't Tim informed? Were the nurses watching over me? Were they addressing my pain or needs? Did they only come into the room and see me sleeping? I am soooo glad I don't remembering being dropped off and left alone. God was watching over me:-)



The PAIN was terrible. Fortunately I kept falling back asleep. I had a bag of ice on my belly but didn't really know it, until a nurse asked about it the next day. I had no idea how the surgery went or how many stitches I had. I had been told a 5-6" incision would be made. All I kept saying was "PAIN". They could not figure out why I was having so much pain. From my understanding the nurses, the doctor, the PA – someone -- was trying to get hold of the anesthesiologist who had installed the epidural to get permission for more meds. No one could get hold of him and he was the only one who could prescribe more pain med through the epidural. L L L Tim said that I – from my blurred state of reality -- said, "Find that guy!" (I actually recall saying that and the pain of talking with an NG tube poking me in the throat!) As usual my demanding self was on guard!! It was about 5pm and finding someone after "business hours" had me concerned even in my stupor. I knew Tim had to leave to get David soon. Fortunately Tim had contacted our friend from small group Cheryl Ong and she came to stay with me for the remainder of the evening.

Finally permission was given for a different pain medication about 7 pm. I had the chest port catheter and the IV in my hand so there was plenty of access for medication—just had to get a doctor's permission. It was discovered that the epidural had fallen out or slipped out of position and that is why I was not getting any pain relief. L L L All I remember was asking Cheryl to pray for me. I am so grateful that Cheryl was with me – what a comfort having her watching over me, praying for me, feeding me ice chips, and working with the nurses! Thank you so much Cheryl!! Cheryl stayed until I felt comfortable enough to fall asleep and as late as she could manage – sleeping on the hospital pull out bed was worse than sleeping on the floor so she headed home about 3:30 a.m.

Even in my semi-conscious state I knew Tim wasn't coming back to the hospital until late Wednesday morning -- after Robyn had picked up David for playtime during Calvary's Women's Bible Study. (Thanks Robyn for taking David for the day!) Being at the hospital without a familiar face was not what I wanted but it was to be. Nurses came and went for the rest of the morning. I still had the NG tube, catheter and IVs.  The first few nurses I had made me cry. I wonder if they would have had more compassion if I had been their family member. Some nurses I actually had to tell them what to do. I remember asking 2 nurses who were standing at my bed waiting for me to get up, "Can you help me? Can you give me a little encouragement?" One replied robotically, "You're doing great," with her arms folded over her chest. Needless to say I needed prayer to be the one with compassion.


Yikes! This is not a 5" incision.


Pastor Jim (pictured) and Pastor John came to pray prior to surgery.


I remember Wednesday morning someone saying you have company! I couldn't quite turn my head enough to see but I said who is it? It was Mark Walker, from our small group. He was making his early morning work rounds at the hospital and stopped in as he had promised. I barely opened my eyes, but I remember asking Mark to pray for me. I asked him to call Tim for me to say hello and to see what time he was coming back to the hospital. I was so happy to see Mark! Thanks again for stopping by:-) 

I was allowed ice chips Wednesday and had visitors throughout the day. I remember seeing Pastor John and sharing my prayer request and concern of trying to be kind to those who seemed to have no compassion or concern of how to help me or help me to help myself.

I believe the catheter and NG tube came out Wednesday afternoon and I was allowed a liquid diet in the evening – like jello, broth, applesauce, juice. The catheter came out without any pain. The NG Tube felt like someone was ripping the inside of my nose out. Two weeks later my nose still bears a scab and occasionally my throat is sore when I swallow. Tim brought David to the hospital to visit me Wednesday – tubes and all. David did a great job and kept asking, what's this, what's that – all the time with a smile on his face. Cheryl came to stay with me a bit Wednesday evening as did Sandy. What a huge blessing my friends were!! After Cheryl left, Sandy played "Crazy Love" for me. I had read the first few chapters so it was familiar to me. We listened to one DVD. She prayed for me and I believe that was the night the nurses got me out of bed to walk a bit and go to the bathroom on my own. Waking up the bladder is sooooo much harder than I could imagine. THAT was painful.

Thursday was a day full of visitors. I remember having Karen West sit with me a couple hours, then seeing, Anne Marie, Diane, Alison, Rose, Alyssa, and my neighbors Stacy and Hannah. I was not a very good hostess – in and out of sleep but I was soooo glad to see familiar faces each time I woke up. What a great comfort to me. Thank you everyone for coming to visit. We had so many beautiful bouquets of flowers too!

Friday Tim picked up my cousin Jill from the airport. I can't remember who stayed with me, maybe Cheryl?  Jill, Tim and David came back to the hospital. I was so happy to see my cousin. What a relief! Jill and Tim had coordinated with my nurse(s) removal of IVs so that I could be released on Saturday. Tim had hoped for a Friday release.

We had "prayer" group instead of small group in the hospital room Friday night. That was so special. Kathy was there along with a couple others from small group. I don't remember much other than Bruce showing up later with my favorite dessert – coconut sorbet!!!). Then Mike W stopped by for a quick hello after a long week and long drive from work. We appreciate our small group so much!!  Thank you all for your love, prayers and support.

Jill stayed the night and helped manage my care. I remember walking the halls of the hospital during the night in order to get my bowels moving. We stopped by the newborn baby window and enjoyed the scenery of new babies. We prayed for the ability to pass gas and have a bowel movement. God quickly answered even the wackiest prayer!!


Someone came in bright and early, turned on the all the lights and announced he was going to draw blood. Luckily Jill interceded so that they wouldn't stick me in the arm again. I had the chest port from which nurses can draw blood so there was no need to get me in the arm again. (My veins aren't very cooperative because they wiggle, so blood draws can turn into 2, 3, sometimes 4 needle sticks.) 


I am so grateful to be home and have the surgery OVER!!! Praise the Lord I had some nurses and a CNA who were compassionate, mindful, encouraging and helpful. Thank you God for the friends and family you have given us. Thank you God for helping me through the hard parts of being in the hospital and for putting me on the road of quick recovery. Thank you for providing an army of prayer warriors to keep me protected in Your arms. Thank you that I only had to be in the hospital 5 days. It already seems like so long ago.


We have a long road ahead of us, but we are plugging along. We met with the surgeon's nurse a couple days after being released from the hospital. The drainage tube in my side was pulled out. Hah - she said this won't hurt but I begged to differ with her...it wasn't her body that she was pulling the tube from!!


We meet with the oncologist next week (the 28th) to see when chemo will resume. I continue to ask for and appreciate your prayers. Much love to you

Sister visit!!

 My sister, Michele, came for a visit and helped me get a few things done on my "To Do" list before surgery. She was able to stay a week and I am so grateful. Thank you Michele for overhauling the guest bathroom in the basement. It looks beautiful!! My Moroccan bathroom...aaah! - bright yellow with hand-made-framed photographs from Ingrid. The basement is now a beautiful retreat for out guests!
Thanks Aunt Michele for the
Veggie Tales  Garden Kit!

A nice evening out at The Cheesecake Factory!!