Our annual neighborhood Halloween Party was quite fun on Friday the 31st. There was a chili cook-off, a costume parade, a no-hands doughnut-on-a-string eating contest, magic show, bonfires and deep fried scones!
My friend Laura was to arrive from CT around 4 but her plane delayed her until midnight. So she missed the party. Unfortunately I was not feeling well when she arrived. Saturday morning Tim talked with the on-call oncologist to see if we again could by pass the ER and be admitted directly onto the 9th floor at IMHC. That Doctor reviewed my recent history and agreed to admit me Saturday evening.
I saw the admitting doctor Sunday morning and basically he said there's not much I can do so we'll just wait until the onc team comes Monday and you can meet with them. He had no plan of action so in his mind it was ok for me to sit around and wait another day before a plan of action unrolled.
So I put myself on the ice chips "diet" knowing that was the protocol last time and I waited. I waited until late Monday afternoon to see the doctor. So, just about 48 hours AFTER admission, I had my first Dr. meeting. She was not a helpful doctor nor did she offer a good plan of action.
On Tuesday I recommended that I have an NG tube. I had vomited a couple times earlier that morning and figured that was the next protocol. I also inquired about abdomen x-rays -- they had done those nearly every day during my last hospitalization to watch the progression of the partial blockage. Yes, they would schedule one. They only did the one position laying on the x-ray table, which I commented that they usually did the x-ray standing against the machine and AND laying n the table. Well, the next day I was back doing both x-rays.
Laura stayed Saturday, Sunday and Monday nights with me in the hospital. We reminisced about our Texas days, camping adventures in Austin, drive to Connecticut, trips to the beach in Mexico, Morocco, southern Spain and Portugal. Amazing how she was able to recall many details that didn't ring a bell to me and vice versa. Denise was kind enough to pick up Laura and take her to the airport for her flight out Tuesday afternoon. It was a short visit with Laura but I am so grateful she got to fly in for just 3.5 days!!
I got on the phone and made calls to my other doctors. I arranged an appointment with my gyn-onc to come to the hospital. Dr. Z came and again Tim, Mary and Laura were able to be my eyes and ears. Mary fielded the questions which was so very helpful because she is an RN and experienced in critical care. She took notes too.
Surgery was not an option per Dr. Z's experience and advice. Earlier advice of placing a stint or stints in the intestines was not an option at this point too.
I was also pointed toward the pain mgmt specialist at my onc center. Great lady, Dr MP! Laura C. had called her, explained my situation and how I needed to see her. God stepped in! Dr. MP had an opening at 1 pm, was in her office which is at the hospital complex and she was going to come visit me in my hospital room - which is something she doesn't normally do!! I felt very blessed. Tim was able to stay after the earlier meeting with Dr. Z and attend the meeting with Dr. MP. Our friends Laura, Mary and Nellie were able to be there too - our topic was Palliative Care. Again, Mary took notes.
The Palliative Care meeting was so very helpful! Why we hadn't done this during my 1st or 2nd hospital stay I don't know:-). We discovered that my condition would have me returning to the hospital more often than not. The tumors -- which were invisible to the ct scan machine-- were undoubtedly sprinkled throughout my abdomen like little tiny pieces of sticky rice tethering, pulling, looping, and binding my small intestines. Plus I had the large bowel obstruction caused by tumors pushing in on the intestine. We were not ale to see exactly how many obstructions or partial obstructions there my be, but with this type of cancer they would indeed continue growing and causing obstructions.
Dr MP suggested a drug called "Octiratide" to get the bowels started. It had been more than a week since any movement or passing of gas. Palliative's goal was to manage the pain at home and allow me to live a qualitative life. We all agreed that it was indeed the best option. So we pulled in the hospitals' social worker so he could get the paper work rolling (it was Friday) and get me released Monday.
Monday came and we got a visit from the hospital's Hospice Team. I honestly thought the guy was a salesman because of the amount of details and positive info he gave. He told me he was an RN with Hospice. Basically the difference between the two is that the hospice nurses have more flexibility and less oversight than the Palliative nurse staff. So I am not sure how we went from talking to Palliative Home Care to Hospice Home Care and then going home with Hospice, but we did.
I was discharged Monday, November 10 under Hospice care.
(Nana Nellie arrived Nov 6 and left Nov 16.)